Update

The past several weeks have been filled with various doctor appointments. The first one was with Jana’s orthopedic doctor and she is still recommending surgery on Jana’s foot. The doctor is thinking of doing a tendon transfer and cord lengthening in which she is hoping –  we could then get rid of most of the shoe modifications. Jana would still need a brace. The actual surgery doesn’t seem to difficult or hard to do. It’s the recovery and intense therapy sessions afterward that look so overwhelming to us. We were also with the eye doctor and he is very pleased with how Jana’s eyes have responded to therapy. He sent us home on vacation for six months, Jana is to just use her eyes and not worry about doing therapy. That was exciting news for us. We took her to Hershey for more BOTOX shots in her arm and that doctor is pleased with how her arm and hand are getting into a better, a more natural position. We had Jana to Schreiber for a physical therapy evaluation. Jana was losing her balance more lately and so what she needs are new shoes, modifications and a new brace. She’s quite excited about getting new shoes. Wearing the same footwear for a year gets kinda old. So she’s keeps asking, “when can we go shopping?” She also does not need to go back for more therapy, they feel she has come as far as she is going to. It’s now keeping what she has and that can be done through her in home exercise program and having occasional evaluations. We also found out good news from several different places lately as well and while we are excited about hearing the good news, it also means there are lots of decisions to be made about our future. So if you remember, would you pray that we could be sensitive to God’s leading and that our brains would be able to think clearly through all the decisions we have to make.

dscn2625The other evening I had to go away and as I was driving, I noticed the beautiful sunset so I called home to my dear hubby and asked if he would be so kind and take some pictures for me. And he did but they just don’t do justice to the beauty of the sunset. It was so beautiful, so calming and restful. It reminded me so much of Jennie. It was the perfect shades and combination of pink and yellow. It would have been a sunset she would have wanted to try to paint with her watercolors. It was also the day after the 27th year anniversary of my mother’s death and I couldn’t help by wonder if my mother and daughter weren’t up there in heaven helping God paint that spectacular sunset just for me.

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